My fight, my battle, my journey

When I was first diagnosed and before I was diagnosed, I was extremly scared of needles, injections, tablets (swallowing then and them getting stuck in my throat), any medical procedures and biopsys and ops, NJ tubes, etc.  If I knew I had to have a needle or have to take any medication or have any procedures or ops,etc. Done I would worry about it and frett about it. I would also be very anxious every time I knew that they would be happening, as soon as I would be told all the emotions/feelings would come at me. When I got diagnosed with acute myeloid leukemia I knew that things like my fears and phobias i would be facing a hell of a lot and i had only one choice and that was to face everything chucked at me. I knew that it was not going to be easy, but i knew facing my fears and phobias is what I had to do whether i liked it or not. 11th April 2020 i will have been fighting acute myeloid leukaemia for 2 years exactly to the day !!! I am 25years old now and i can say i believe i have

When you are poorly of any description or you have a conversation or if you think someone is feeling down etc. One of the first things people say to you or ask you is HOW ARE YOU???...... The answer for this can be easy if you are having a good day, but when you are having anything other than a good day the answer can be far from easy!! When the answer is mostly like yes I'm kinda ok, or I'm ok thanks to I'm doing well as I can be are sometimes the most easy and simple answers I can give and truly being honest I might not know how I truly feel or I cannot explain what I am feeling as there are no words for the emotions I have and am thinking about, the best way I can explain how I feel majority of the time is NUMB!!!.  When you feel NUMB it doesn't mean that there is no emotions/feelings inside you it's a feeling that what you feel you just can't get out. When you are a cancer fighter or you have had cancer they are the people that understand how other cancer f

When you have cancer alot of your days are hard! There are days where you feel like you can do everything and there are days where you feel and can't do anything. Today is Saturday 29th February 2020, and today I'm having one of those not able to do anything days. Every saturday we go to my nan's to see her and my aunties and uncles and little cousins. More times than not on previous weekends I've been able to mess around with my little cousin and more importantly do alot for myself. Today I am having an extremly bad day. This morning I woke up at 0830am and I had to have help getting dressed from my mum. I descided today as I feel awful I'm going to wear clean Pjs and fluffy socks on my feet and then I will be as comfortable as I can be. Because my body is really swollen due to fluid retention and it's also really uncomfortable I've had to borrow and wear my dads spare pair of shoes due to the fact I cannot fit my feet in my own shoes as my feet have swall

Its 04:52am on the 9/2/2020, outside is extremely windy and you can here the wind blowing everything around. I'm laying here with pains in my legs (think that is what has truly woke me up in the first place), so I thought right I'll go got a wee and then once i get back into bed I'll try and go back to sleep. So i went for my wee and then went back to bed, wind was making so much noise/howling i didn't like it I just laid here and laid here, things and feelings keeps wandering around my head, I'm trying to switch off but the things I'm thinking about are so strong it like i cannot switch off how I'm feeling and my mind is working overtime. All my worries about what treatment I am facing next to worrying about what damage the wind is doing outside as well as being in extreme pain in my legs and feet I could honestly cry but my body won't let me cry no more. Months ago/years ago I used to sleep so deeply and I would go through the night getting no pains

Day 22: monday 20th august 18: Last night I slept like a log, I didn't sleep with any pyjama bottoms on last night because my bottom and front needed to air (due to the fact my skin was extremely sore and some areas were broken skin). I had a foot massarge and my finger nails painted. The male nurse told me that today my neutrophils are 0.87 so that means I'm not neutrapenic anymore! 😀, the doctors are saying that possibly next week I will be allowed to be discharged home. Today i ate 1 peach muller corner yoghurt. Today also I had a physiotherapy appointment where the physiotherapist came to me on the ward and gave me some exercises to do each day and increase each day. Day 23: tuesday 21st august 18:  Mum and my brother visited today. I also saw my clic Sargent worker who is sending my wish thing off today. I drank a fortisip drink (special build-up drink) and ate 6 chilies cheese bite things from burger king (freshly made). I sat in my red armchair and did my exercises. The

Day 15: monday 13th august 18:  Today I have a feeling my mucusitous is back 😭. A nurse said this morning that my neutrophils are 0.55 which means my immune system is growing again which is a good sign, but she said it's still very early. I had blood taken from my arm today so they can check my tacrolimus levels, my hickman line bled fine this morning again, I had my pre-meds and then had my ambisome IV infusion. My nutrients feed last night was ok, I ate a yoghurt, I'm still got blood in my urine. Later on I ate a vanilla muffin and then ate 1/2 of a chicken tikka and rice meal. The doctor came round and is happy with me, later I ate a tuna and mayo sandwich. The doctors then came round this evening and they said that they happy with me, I told them I feel like I have a sore throat so they are aware. Then later on I ate 1 packet of prawn cocktail crisps , had a strawberry milkshake and ate a yoghurt. Day 16: tuesday 14th August 18:  Last night I didn't sleep a wink last n